Thursday, June 30, 2016

Where Did Hope Go? Update on FET

I'm not doing any work anyway, so may as well post an update on my fertility saga here.

Today I had another ultrasound to see if we can try to get me pregnant again- when I think of the most recent series of event, I include the negative pregnancy test in March after a frozen embryo transfer with a five day delay due to lining problems, then a cancelled cycle in May when my uterine lining absolutely didn't respond to medications, then three weeks of antibiotics, and now ten days of using the estrogen patches instead of pills.

I went in today fully expecting no growth again, and for today to be the end of medications, ultrasounds, and for us to be a single-child family. Well, my lining DID grow. Not a stellar result, but enough to do a few more days of meds and check again on Tuesday.

So you'd think I'd be happy, right? Instead I am.. tired. Tired of all this crap. It's been months and months of ups and downs- mostly downs- and both of us are actually really coming around to the idea of stopping treatment. Having one child is sounding very appealing to me. I was an anxious pregnant lady, and the newborn days were not kind to me. Financially we can afford a second, but it will be tough, and we can afford some awesome vacations with our only kid and to retire much earlier with only one- I've been checking out Alaska trips with the refund we'll get if we quit treatment. And a few days ago I held my friend's newborn and I was happy to cuddle her.. and then equally happy to hand her back.

So, what does this mean? I feel like I have to at least continue meds till Tuesday and then see what my lining is like, but I'm trying to figure out what is going on with me, who so desperately wanted another child just a month ago. Am I insulating myself from hope by blocking all positive thinking? Or did I really just change my mind? How does one decide to have or not have a second child? Will I regret not moving forward, if we decide to stop, because the infant days are short and a family is for life? I am on a waiting list for a therapist because I honestly cannot figure out what I want. It's very confusing. I endured years of infertility and surgery and treatment to have my now-28 month old, and cried my heart out when the March pregnancy test was negative, so why am I so ambivalent now? WTF is wrong with me?

Thursday, June 16, 2016

Update on lining troubles and FET future plans

Fertility update and mind dump coming.

Since our last cycle was canceled due to my uterine lining not growing enough, I have been ok. Sort of. I've been taking more Valium than I should, and crying more often than I'd like. But, I don't want to focus on that right now.

I have been offered two choices: surgery to evaluate and possibly repair my uterus, which may have sustained unknown damage during my c-section two years ago or might just be invaded my endometriosis again (Asherman's Syndrome is a possibility), or simply try a different form of estrogen supplementation- the patch, which is what I used back when I got pregnant with my now-toddler, and see if that thickens my lining.

We had a long talk and we've decided to try the estrogen patch option to see if that does anything, but if not, to stop. The surgery option is outpatient surgery and I've had surgery before, but neither of us is excited and frankly I am terrified. Furthermore, it will cost a lot, and is no guarantee either- ie. it could be for nothing, and it's totally unnecessary beyond fertility. My long term health is fine, beyond regular endometriosis symptoms that I can control by staying on the pill till menopause.

So, these are the facts. We'll try this one last option, but not go to extreme lengths. These are my husband's wishes and he was the one who originally wanted a larger family. As for me? I don't know. I keep asking God and the universe and myself: what do I want? I know I am scared of surgery. I know I want another baby, but I also can see the myriad benefits of just one, and of moving on with our lives. I do not especially want to be pregnant again. I never want to breastfeed again. I am worried about the finances of having two kids and working.

But: how do you KNOW what is best for your future? How do you choose something that will affect you the rest of your life? How do you turn down the unknown path? What do you do when you squint into the distance and it's just... murky? I don't feel that I am being called to have another child, but I also think of those could-be embryos and what they would be like and I feel sharp, deep, intense grief and longing. Of course, we might find out because we plan to donate them to a family that can't afford the treatment we did, but still, they won't be our children once we turn them over. So, I guess I need to sit with this, but I don't want to sit too long. I want to move on and I just need to figure out how to turn away from the road not taken. How does one do this?

Tuesday, May 24, 2016

Second FET Cancelled

As I wrote last time, my first FET resulted in a negative beta. My lining was thin, but they let me go forward. My doctor was convinced that it was just bad luck. Even in the best case scenario, FETs only have a 50/50 success rate.

But, the bad news wasn't over with that cycle. We tried a non-Lupron protocol this time, just estradiol pills, and unfortunately my lining was even thinner. Like, a 4. Nothing. We canceled this cycle.

So, it looks like I might be at the end of the road here. My doctor is trying one last thing, which is three weeks of doxycycline and then re-checking my lining to see if it made any difference. Sometimes inflammation can cause lining to not respond to estradiol. I don't know why I'd have inflammation though. 

But despite this treatment, he said it's likely that I might not be a candidate for further transfers. He didn't have any really great explanation why. Perhaps my uterus sustained some infection and/or scarring during my c-section to have Leo. He said this is not common knowledge, but actually scarring and adhesions can result in infertility in more than 2% of c-sections. But, he's not sure, and I'm not interested in exploratory surgery at this time.Frankly, I am terrified of more procedures. And tired. Oh so tired. 

Amazingly, I have had someone offer to be my surrogate. But I don't think we are interested. Honestly, having an only child is looking better and better, the more we think about it. Though I have moments of intense sadness when I look at my toddler and wonder what the other four embryos would have been like.

At this point, I'm just taking my doxycycline and waiting for my next lining check in about three weeks and if it's a no-go, we'll be seeking homes for our embryos. 

I am feeling... so confused. Why can't I grow a lining? I have never had great linings, but a 4?!!?  Also the argument that my uterus is scarred doesn't sit that well with me, since my last lining was enough to move forward with FET #1. So why now the sudden non-response to the estradiol? Why isn't my doctor interested in other forms of estrogen?

Dr. F, my former doctor and the one who I saw again when I had my monitoring done, seemed taken aback and called my uterus "special." My Atlanta doctor also said this is unusual. I have not gone down the google rabbit hole.

I am not distraught like I was before, with the first FET. I am constantly thinking about it, but not feeling the same sharp, biting grief. It's more like a dull thud this time. I can't quite explain the change. I just feel... tired. So tired of the constant struggle. And though I do not believe anything is "meant to be," I wonder if there isn't something positive about stopping now, and focusing my energy and love on the child I already have. My head says yes. I am not sure what my heart says. My heart leans towards fighting this lining issue. I don't know what will happen, but I will have some answers in about three weeks. 

Friday, April 1, 2016

One Week Post Failed FET

As expected, my beta last Friday was negative. Zero, zip, nada. I quit taking my progesterone even before the doctor called me, because why waste the $20 each suppositories for nothing.

It was a hard, sad weekend. My mom was here and she just does not get it. She didn't say anything wrong per se, but she was fine with just having one kid and doesn't understand my yearning for another, or my sadness when I think of that perfect, lost embryo. So I tried my hardest to not talk about it, which maybe was for the best anyway.

Things I have been doing to take care of myself:
-letting myself just be sad, mostly on my own, in my own head. I have informed my friends who knew I was doing a cycle, though mostly by email because I don't feel ready to talk to most people about it yet.
-eating well but also allowing myself more treats than usual. I lost several pounds from having pneumonia but I predict I'll gain it back just through chocolate consumption this week alone.
-being sure to get 8 hours of sleep a night.
-after a frustrating attempt to find a therapist because my former one and two others are all not accepting new patients, a therapist neighbor got me connected to someone who can see me on Tuesday and I'm grateful for that. I need time and space to talk and cry and not feel guilty for my feelings or making someone listen to me. The sad part about where I am now in life is that my husband and I have very little kid-free time to actually sit down and talk, and he's not the best at this sort of thing anyway, since he's very focused on not giving up and just moving ahead. I am still stuck in the feelings of now. I had a great group of friends from my infertility support group when I was trying last time, but of them, two don't think they want another child and three did manage to get pregnant again with no intervention. They are good people but not what I need right now.

Things I haven't been able to do to take care of myself:
-exercise. I love and rely on the gym to make me feel better, but I am only 3 weeks out from a walking pneumonia diagnosis, and still feel a significant amount of discomfort in my chest/lungs. So as much as I want to go tire myself out with intense cardio, I am not sure when I will feel ready for that. I am not really a yoga person because I get bored and fall asleep, or would rather relax with a book or Netflix if I'm not going to be exercising anyway.
-really talk to anyone about this. Of course my husband gets it, as he deeply desires another child too. But his ability to be supportive is limited by his intrinsic nature of cheerfulness, and propensity to look forward to the next cycle instead of dwelling on the failed one. This is too hard for me right now, so we just avoid talking about it too much. I hope that I will find the therapist helpful next week.

My current plan is to take this month off. When I had the WTF talk with my doctor on Friday when he called with the negative beta results, he seemed surprised I'd want to take a month off. However, then he heard me cough, and agreed that some time to heal is not a bad idea. He did tell me that the pneumonia did not cause my negative pregnancy test, but these are precious, expensive embryos and I don't want to have any doubts that I'm not giving them the best possible chance, so for me that means waiting.

Another thing that came out of my phone conversation with him is a new, lowered expectation. I knew my chances of success with the fresh embryo were about 60%, but at transfer he had given me a 70% chance because I had such a stellar quality embryo to transfer. So I foolishly kept that in my head as my odds this time. And then felt totally crushed when it was negative. Dr. S told me on the call that with a frozen, the odds are only 50/50. That is much lower than I had been assuming.

So now we're in the place of paying another $5k, by the time travel and meds are included, for what is only a 50/50 chance. And with my third best embryo at this point. This does not feel good, but what choice do I have?

I am now on cycle day 5, and when I get my period I will immediately begin the estradiol again, and transfer will be around day 19. I'm a little worried this will fall right when I am due to be out of the country for a work trip, but I am trying my hardest to not stress until I know. I hope my period is early  or late and it's a moot point, but we will see. I only stare at my calendar a few times a day, willing it to work out so I don't have to wait till freaking June to try again.

So overall, I am not in a great place. I'm eating into our precious savings, and finding myself too sad to look forward to things that normally made me happy. Of course, being with my toddler is still wonderful, but it doesn't make the sadness go away in those long hours I am trapped at my desk at work or during the long evening hours after he goes to bed. My husband keeps reminding me that we are in such a better place than before we had him, and that we have plenty of frozens left, but hope and money do come in limited amounts for me. I feel sad, and disappointed, and bitter at the unfairness. Wasn't three failed IVFs and one canceled one enough, universe? Wasn't having to forgo my own genetic child and pay for donor eggs enough? Wasn't my years of wanting a child enough? I am beyond grateful to have one, but as three of my former-infertile friends have gone on to conceive on their own, it leaves me feeling bitter and confused all over again.

Enough moping. I have a plan, and I am not going to pretend the next seven weeks will be anything but long, but I will do what I can to feel as good as possible. I hope therapy helps, and I hope this dark sense of hopelessness is not completed by another negative test. Sigh. This is so hard.

Thursday, March 24, 2016

Failed FET

I have not updated this in over a year. I am sure no one is reading anymore.

But I need to write today. Twelve days ago, I flew back to Atlanta and we transferred a perfect embryo, same quality as the one that made my son. Today, I took a pregnancy test and it was negative.

This cycle was far from perfect. I had lining problems. I lost hundreds of dollars on airfare when I had to delay my transfer at the last second, because my lining was too thin again. Or was it too thin? I will never really know. My local clinic thought so, my Atlanta doctor couldn't tell from the grainy ultrasound photos, then he was gone on a critical day, and so I was delayed.

In the meantime, right after I was on estrogen for an extra five days, then given the go ahead once he saw better images, and after I re-booked the flights, I came down with walking pneumonia. I spent a week in bed. I took five days of antibiotics, overlapping with the five important days leading up to transfer and the medications I was taking for that. Then I lugged my exhausted tush down to Atlanta, when I had barely gotten out of bed for a week.

We transferred one perfect, five day blastocyst. And apparently it did not take.

I had a bad feeling, but I have been telling myself that I was being irrational. I had no spotting or cramping, as I did with my first pregnancy, but I know most people do not. The lining issues were a problem but then seemed not to be. At my transfer, the nurse commented that my lining looked good. I used such a beautiful, strong embryo. I don't know, and will ask, about the possible effects of the pneumonia, but they didn't delay my transfer and they knew about it.

So I think that the end story is, I just fell on the wrong side of the statistics this time. Even with a decent lining, adherence to meds, and a perfect embryo, someone has to fall in the failures.

The pain is sharp and numb at the same time. I held my two year old this morning and felt his warmness, and I know what a miracle he is and how he has changed my life. At the same time, I feel the loss of that embryo, that could-have-been sister or brother, son or daughter. I am staunchly pro-choice and I believe an embryo is not a child, but at the same time, it could have been my child. My much loved, much wanted one. It could have been a sweet, smiling, cuddling child. This loss is as painful as my first three IVF disappointments were. I am so grateful to have a child; at the same time, I feel the loss of a child in a more defined, concrete way. I know the smell of a new baby, and the first smile.

It's not over. I have four precious embryos left in Atlanta. I am considering: do I take a cycle off, or do I plow ahead, starting the Lupron again in three weeks? How much of a factor is this pneumonia, and will I feel better in six weeks for transfer- I assume I will by then. Can I wait and see how I am doing in two weeks? I think that is the answer.

Beta is tomorrow. I will get through today. In six hours, I will be holding my little monkey boy again. He is the best medicine, both reminder of why I am doing this and what I don't have but want again. Life is so unfair. There is no reason, no cure, nothing else I can say.

Monday, March 2, 2015

One Year Old

Ten days ago, my little boy turned one year old! He is no longer a baby, but officially a toddler. I can't believe how fast this year has gone, and that I have not updated this blog in almost 9 months. I always mean to, and then get busy at work or home. But the one year mark seemed as good as any of a time to check back in.

What can I say? This year has been one of the most challenging yet one of the sweetest. From an easy pregnancy yet an upsetting birth and even more distressing troubles with breastfeeding, we moved on to my return to working full time and some of the typical challenges: trouble with sleep, missing him during the day, exhaustion at night after very full days, and never being more sure that I made the right decision. This boy is my sweet, sweet answer to why I struggled for so long to have him.

I was lucky enough that many of my friends from my infertility support group had babies around the same time as I did, and many of my regular friends also experienced a baby boom. So at his 1st birthday party last weekend, there were at least 10 other babies who had been born within a few months of mine. It's so interesting to see them reach their milestones at different times, and have such different personalities. I am so curious to see if how we view them now remains the same. For example, a friend with a baby a month younger than mine has a boy who is way bigger than my son, and way more rough and tumble. L is very gentle, very much still the baby, and though he loves to play and explore, he is most content in my arms. He's very cuddly and I'm not sure if it's just his nature, or if I've somehow made him this way. Nature versus nurture is an interesting question.

Anyway, he is exactly the boy I had wanted (well...I guess I do wish he slept a little better, but you can't have everything). He's gentle and sweet and loves to cuddle up to me at night, reaching out an arm or a leg to make sure I'm there, and nuzzling my face with his when I pick him up at the end of the day. He loves his buddies at the nanny share, but he loves to sit in my lap when we get home and have me read to him. Yes, we're still cosleeping, though only after his first wake-up, which can be anywhere from 10 pm- 3:30 am. And though it was one of the hardest decisions I've ever made, giving up breastfeeding was also one of the best, and I have zero regrets. And now that's not even drinking formula anymore, it seems so long ago that it was even something I agonized over. He's big into every food I offer him now, with his favorite being sweet potato puree with coconut milk. He also loves blueberries, pineapple, and my morning oatmeal. Well, pretty much anything I am eating! He gives me those big eyes and his little bird mouth, and suddenly he's eaten half my food.

I am selective in who we talk about donor egg with. It's nothing to be ashamed of, but it's also his story just as much as mine. The infertility is my story, but his origins are his. So I don't want to post a photo of him, but he does look remarkably like our donor. He has my husband's coloring- his olive skin has lightened as he's gotten older, so he's now quite fair, with sandy brown hair and blue-grey eyes. But his features- those are the donor's, no doubt. When I compare photos, I see the resemblance. Although people are always saying they see me and my husband, I don't. I see the donor, and it does not bother me. I am grateful for her gift of her egg. But this boy, he is clearly my boy. He's cuddly and sweet and reaches for me and sleeps with his head tucked under mine. We're attached, deeply attached.

Of course, I am still me. Now that's older, I've gotten more of my life back. No doubt that it's definitely not my old life. I find it hard to make it to the gym once a week, unlike my old three times a week goal. I do still cook a nice dinner many nights, and we watch Netflix now that he's sleeping better, and I still read a ton and work full time and make yummy food to send with him to the nanny's. We see friends, though it tends to be playdates, but sometimes I sneak away for brunch with a friend who doesn't have a little one. I am looking forward to spring and returning to walks in the woods as a family. He loves to be worn in the Ergo and we love to take him along to see the trees and hear the birds and spot some deer. Although having a baby can stress a marriage, we are good most of the time. Not like the old days- no travel, not many dinners out or movies or shows, and no lazy Sunday mornings in bed. We spend quite a bit of time talking about cute he is, even after he's in bed.

So, overall, things are pretty good. We have jobs, a beautiful boy, and life is more or less stable. But no, no I cannot imagine having a second child. We are stressed much of the time. Two working parents is hard. I end up missing a lot of work just to get life done- doctor's appointments, rushing to and from the nanny's, basic house maintenance, etc. Although we do intend to have a second, it seems unimaginable to me right now. We said we'd discuss in the summer, but I don't know. Sigh. Life is busy, and there are always things to do, and I'm slacking at work and sick with colds all the time.

But overall, life is sweet with this baby. I have something to look forward to each afternoon. This baby was worth the wait.

Wednesday, June 11, 2014

Back at Work

This is the middle of my second week back at work. The first day was hard. I bawled when I shut the door of the house where my son is staying with the nanny. I cried and cried, and had to force my feet towards the car. I felt as if something had physically been taken from my body.

Okay, that was dramatic. The good news is, things got much easier! And now, eight working days later, I'm actually rather enjoying being back at my job. This is how our daily schedule goes:

7:30 am: the three of us get up, and I feed the baby a bottle while my husband showers and eats. lots of baby giggles and smiles ensue (morning is his best time)/
8 am: we trade- husband dresses and changes the baby, I get ready for work
8:30 am: leave the house
8:40 am: drop the baby at the house of the family we share the nanny with, and I drive to work
9 am- 3 or 3:30 pm: I work. I try not to look at photos of him because it makes me sad, but I know I can look forward to seeing him before too long.
3:30-ish: I leave and pick up the baby. Reunited! Hugs and cuddles and we drive home.
4-10 pm: baby and I hang out. Sometimes he takes a short nap. I make dinner if my husband is home and can hold the baby. If not, I am bad and eat nuts for dinner. After dinner, maybe some Netflix with him on one of our laps, usually napping.
10:30-ish: we feed him one last bottle and go to bed
4:30 am: baby wakes up, has a bottle, we go back to bed
7:30 am: it all begins again

So, life is not too hectic. And on a good day, this schedule actually works! On a bad night, like last night, he was up three times, not once (not sure why, maybe teething...). But I don't really mind.

One thing I've been surprised at is how judge-y people are. I've gotten over any lingering guilt about not breastfeeding or pumping, but now it's our sleeping arrangements that people like to criticize. For the first few months, the baby slept in his co-sleeper half the night, and in my arms half the night. Since I've been back at work, I want to breathe in his sweet baby smell as much as I can. Also, he settles a lot faster when he's in bed with me. So we sleep together, me on my side, him in my arms, and the blanket holding me so I don't roll backwards (I have a bed that's just a bit too soft). But I've learned that people think I'm spoiling him, and that now he'll "be in bed with you when he's 10." Ummm, no he won't. We just sleep better, and I am at work all day, so what's wrong with being close when we are both home? And no, he won't be in bed with me when he's 10. I promise. I figure in a few months he'll be sleeping better and probably want his freedom, and anyway once he starts rolling over, it might be safer to have him in his own space. So, lesson learned: don't tell people how we do things. Everyone has an opinion, and thinks they have a right to express it. I don't care. This is what works for me, and works for my baby. I waited many long years to have this little guy, and I can sleep with him if I want to.

As far as him being the result of donor egg, we still have kept this information mostly to ourselves, my family, and a few friends. It's funny though, I am still occasionally told how much he looks like me. I guess we chose our donor well! I personally do not see a resemblance, other than the fact that he has my hair and skin color. His eyes seem to be staying a grey-blue, which is surprising because both his daddy and the donor have green eyes, but they are pretty so I think it's nice. I am now the only brown-eyed one in the house- even the cat has big blue eyes!

He's not quite as big as the cat, but getting close...
I am slowly getting back into cooking and watching Netflix and even occasionally reading, and being at work is kinda nice, but I do think about my baby all the time. I guess that's what being a parent does. And I am convinced- CONVINCED- that this baby is the cutest baby in the world. When people who are in the know ask if I've considered trying for baby #2 naturally- you know, just to see if it could happen- I almost feel like laughing. First of all, I do not believe it's likely it could happen. But second, this baby is SO great, that using my own eggs might be foolish! How could I do any better than what I was given??

I am not a religious person, but I feel truly blessed to have had this work for me. Infertility was the worst, but it has made me appreciate this time, now that the dark days of pumping and depression have passed. Even the cat has come around to accepting the baby (see photo above). All in all, this is a very sweet time in my life. It's not perfect- I still can't wear pants since my c-section and my husband recently was laid off at work- but the major problem in my life is now a thing of the past. It's not gone, I still feel a twinge when hearing about someone who easily conceives or has five kids or complains about their children loudly- but the pain and bitterness DO get better.